Find a cure for Liam
Coats Plus is a rare, inherited, life-threatening disease. Liam is living with it now. We're racing to change his future — and the future of every child who comes after him.
Two ways to be part of the fight
Coats Plus families, doctors, and researchers — you’re not alone in the wilderness. And if you’re moved to help fund the fight, every gift moves the science forward.
Fund the cure
Your donation goes directly toward the research, the patient registry, and the day-to-day fight for a treatment. Give once, or give monthly to keep the momentum going.
DonateAffected by Coats Plus?
Whether you’re a patient, parent, advocate, clinician, or researcher — connect with us. More patients mean more data, and more data drives the science toward a cure.
Connect with us
Why we fight
Built by a family, for every family.
Bryan Docobo founded the Coats Plus Foundation out of love for his children and a refusal to accept that nothing could be done. The fight is personal — and it’s the same fight every Coats Plus family is living.
This is where the family’s story will live, in their own words.
Learn about our storySee the fight in motion.
Short films from the Coats Plus community — the science, the families, and the events moving us toward a cure.
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What is Coats Plus Syndrome?
Here’s how it works — and why finding a cure can’t wait.
Rare & inherited
Coats Plus comes from a change in a single gene (CTC1) that a child is born with. It’s one of the rarest diseases known — so rare most doctors never see a case.
Pediatric
It appears in early childhood. That gene change wears down the body’s telomeres — the protective caps on our DNA — so cells can’t renew themselves the way a growing child needs.
Whole-body & progressive
Because every cell depends on healthy DNA, the damage spreads across the body — the eyes, blood, brain, bones, and gut — and it worsens over time.
No cure — yet
There’s no approved cure today. But the science is moving: an off-label treatment has already stabilized the disease in some children internationally.
There’s no cure yet — but there can be.
Learn & gather
Resources, research, and community.
Real momentum
A small monthly gift keeps the fight going.
Research doesn’t stop, so neither should the funding. Become a monthly donor and power the search for a cure all year round.